The story of Microsocopic Polyangiitis (MPA)

The story of Microsocopic Polyangiitis (MPA)

MPA has attacked my kidneys in 2012 and now 2 years later it has also attacked my left eye.

November 2014 it will be 2 years that I am on sick leave and in the Netherlands that means that I shall have to be examined by a physician working for social security. This is necessary for me to be eligible for social security and the percentage of social security I will be receiving and the percentage I am still fit to work. And afterwards someone else has to examine what sort of work I can still do given the fact that I am partly unfit to work and that I have to have dialysis 3 times a week (with everything that entails). A few weeks I have sent in the necessary paperwork for the request of said examination. I received notification that paerwork had ben received and yesterday someone from UWV (the office that does the examination for the social security eligibility) called requesting some extra info regarding my auto-immune disease. I explained to him the status of my disease and what my disease can hold in store, the attack of the other organs in my body (infections of the capillaries of an organ). Now he has to use that information and act upon it as part of the examination.

Anyway; I need a holiday.

Harold Ramis R.I.P.

Februari 2014 Harold Ramis, star in the movie Ghostbusters and director of several movies such as Groundhog Day, died as a result of Autoimmune Inflammatory Vasculitis. (http://en.wikipedia.org/wiki/Harold_Ramis)

Autoimmune Inflammatory Vasculitis is related to Microscopic Polyangiitis and is an autoimmune vasculitis disease.  (http://en.wikipedia.org/wiki/Vasculitis)

It is of course utterly necessary that research is continued to the nature, causes and therapy of autoimmune vasculitis disease.

In my case the cleansing of my blood of p-anca particles is part of the therapy to overcome the disease, next to regular dialysis and a sodium-poor diet.

As a result of my present therapy my dialysis sessions have been shortened, from 4 hours per session to 3 and a half hours per session. But 3 sessions per week still.

A friend accompanied me to the Dialysis Clinic

Two weeks ago a friend of mine accompanied me to the Dianet Dialysis Clinic in Amsterdam. She wrote about it in her blog. I would very much like to ask you to read her blog on the Good Men Project. Her name is Sherri and she lives in NYC.

Intimacy With a Man Going Through a Health Crisis

http://goodmenproject.com/featured-content/intimacy-man-going-health-crisis-gmp/

The info about MPA

The story of Microsocopische Polyangiitis (MPA)

(because of judicial reasons this part has been deleted)

….

The Dutch Wegener Stichting is in the Netherlands the main source for everything related with Vasculitis diseases.

The Cleveland Clinic and Johns Hopkins are the main sources for such information in North America.

For more information about MPA:

Wikipedia http://en.wikipedia.org/wiki/Microscopic_polyangiitis (Enlish)

Wikipedia http://nl.wikipedia.org/wiki/Microscopische_polyangiitis (Dutch)

Wegener Stichting: http://www.vasculitis.nl/ (Dutch)

Cleveland Clinic: http://my.clevelandclinic.org/disorders/microscopic_polyangiitis (English)

Johns Hopkins: http://vasculitis.med.jhu.edu/typesof/polyangiitis.html (English)

See also in Wikpedia: p-ANCA, Vasculitis, Churg-Stauss Syndrome